Friday, June 06, 2008

Changing Stuff on the Whiteboard

Sometimes you think you have all these best-laid plans, you got it all figured out, then someone throws a wrinkle, a new idea, or some kind of roadblock into you plans. I'm not sure I've covered it here, but we've had Grace in a preschool disabled class this year, and the half day program just hasn't worked out. To the point where we called an IEP earlier this year and planned to have her transitioned to an autistic program this summer then into the fall. We had felt pretty good about the decision, she would have her transitioning issues worked on and she would be engaged throughout the entire day, rather than be pretty much left to her own devices for half of the half day.

Well, a somewhat perfunctory visit to her developmental pediatrician sent us a spinning. For us, we feel a developmental pediatrician is kinda like having a lawyer. You have them around to kinda scare school systems and insurance companies into doing what you want. "You think she doesn't need speech? Well, MY developmental pediatrician is BF Hutton, and BF Hutton says.." When BF Hutton systems listen!" Anyway, BF Hutton disagreed with our assessment of what Grace needed, she thought we needed to work more on her socialization and that our choice would leave her lacking in this area. But since we are 'Grace development' specialists, we take it with a grain of salt. And since we have a rather extensive network of professionals to bounce opinions off, we have decided to look at the program she is recommending, but only change if we are so floored by the experience, that we WANT to change over.

It gets me thinking of all those poor new parents though, who don't have the benefit of 4 years experience with another child; who are intimidated by either the school system, the medical professionals, or perhaps even a spouse or family member. It makes me cringe to think of all the bad decisions being made for our kids out there on the basis of prejudice, bias, incomplete experience or, worst of all, financial considerations.

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