Saturday, July 11, 2009

Hey Ed...I Love You

Forgive me for hijacking my regular posts to answer someone who has gravely misunderstood me. I have endeavored in the past few days to raise awareness on legislation before the US Congress to require insurance companies to cover various therapies normally in use for autistic children. It happens to be something that is very important to me and my family; since occupational and speech therapies for my two daughters runs into the thousands of dollars every year. I have been on a couple of blogs on Autism Hub to discuss and debate the issues and points of conflict with the use of therapies, particularly ABA. Which brings me to Ed.

I posted comments on his blog to discuss the particulars of my position and it appears to have gotten out of hand and I am now banned from further discussion. Hence, the reason for my post. I just wanted to say that, if my comments offended you, I am sorry. My desire to understand and empathize with those living on the spectrum is not only genuine, it is a matter of necessity, since I am, by proxy, responsible for trying to understand the needs of two young children on the spectrum.

I'd really like to go point by point why I feel you have gotten me all wrong, but I'd rather just say, metaphorically speaking of course, I love you man. I have to love you because you represent a possible future of my daughters; albeit a radical one, but one where they will be self determined.

I will not be seeking any further dialog, unless initiated by you...I wish you well...


Ed said...

Alright sorry for the harsh words.
I'm sorry for misunderstanding you. I sincerely hope your children get all the help they need. I wish only the best for their future.

and aw heck.... I love you too.


In my line of work, I have to troubleshoot computer system problems and evaluate requests to see what's possible within the constraints of the current process. Given budget considerations, I am frequently left telling people that it's a good idea or a valid problem but nothing can be done right now, because either the system is not designed to handle it, or the money is not available to fix it.

You guys are consistantly reminding me of society's 'system' problems. My positions and actions are constantly in need of doses of reality, because what we do as a society for and to autistics is still far from perfect and frequently far from good.

I still have to work for my daughters within the bounds of what is right, what is available, what is affordable and what we can physically do. Frequently, they will not mesh with what is ideal. I will debate not only to change opinions of others, but to debate myself and my own ideas. Thank you for providing me a foil for my views. I hope we can get along in the future...Bill